This section lists blog sites, support groups, and other resources that are found online that you may find useful.
Patient Blog Sites – CaringBridge
CaringBridge is a nonprofit providing free websites that connect family and friends during a serious health event, care and recovery.
A CaringBridge website is personal, private and available 24/7. It helps ease the burden of keeping family and friends informed. The websites are easy to create and use. Authors add health updates and photos to share their story while visitors leave messages of love and support in the guestbook.
Patient Blog Sites – CarePages
CarePages websites are free patient blogs that connect friends and family during a health challenge
Website Development Tools – Wetpaint
A Wetpaint website is built on the power of collaborative thinking. Here, you can create websites that mix all the best features of wikis, blogs, forums and social networks into a rich, user-generated community based around the whatever-it-is that rocks your socks. A social website that’s so easy to use, anyone can participate.
Personalized Music – Songs of Love
The Songs of Love Foundation is a nonprofit organization dedicated to providing personalized songs for children and teens currently facing tough medical, physical or emotional challenges, free of charge.
Children’s Hemiplegia & Stroke Association
CHASA is the first non-profit organization in North America to offer information and support to families of infants, children, and young adults who have hemiplegia or hemiplegic cerebral palsy.
Hemiplegia in children is due to a number of different causes and includes stroke, blood vessel disorders, infection, trauma, tumors, and other rare causes. The most common cause of hemiplegia in children is infant stroke or childhood stroke. 95% of the families we serve have a child who has survived an in utero stroke, perinatal stroke, or childhood stroke.
HemiKids is an online discussion group where you can meet other parents of children who have hemiplegia, hemiparesis, or hemiplegic cerebral palsy. With over 1650 families, you’ll find others who understand the joys and challenges of raising a child with hemiplegia. We talk about many issues – why our child had a stroke (many of us still don’t know), how to find the best therapies, ways to help our children learn to dress independently, ideas for working with teachers and school systems, and more.
CHASA – Children’s Hemiplegia and Stroke Association
eFamilyTV (Exceptional Family TV)
We at eFamilyTV realize raising a child with special needs takes an extra amount of care as well as stress. Doctor appointments, therapies, treatments, surgeries, g-tubes, wheelchairs, communication devices – the family unit as a whole goes through extraordinary circumstances in comparison to other “typical” families. It is for this reason we call these families “Exceptional” as it defines the unusually good and outstanding role they play in the lives of their children.
Exceptional Family TV is about, for and to serve YOU. We promise to deliver engaging weekly episodes specifically designed for exceptional families.
This is your online, home destination. eFamilyTV focuses on parents/families/caregivers raising children with special needs (ages 0-21), with the future goal of covering topics pertaining to parents/caregivers for those in the adult age beyond 21-years of age.
Zach’s List – Pediatric Equipment Exchange Source
Kids with special needs can have a lot of equipment needs. Wouldn’t it be great to reduce the costs, reuse the equipment and recycle those wheelchairs and walkers to people who can use them? Welcome to Zach’s List… Your Pediatric Equipment Exchange Source.
Charity Village
Charity Village is Canada’s supersite for the nonprofit sector. Every day, you’ll find more than 3,500 pages of news, jobs, resources, how-to articles, volunteer and event listings, educational opportunities, and much more. If philanthropy and volunteerism are part of your world, this is your place.
