MitoCanada

Mito Masquerade Ball in Montreal

Suzanne Gowland — Wed, 16 Nov 2011 04:36:07 +0000

The Mito Masquerade Ball in Montreal on November 4, 2011, was a huge success, raising $1700 for MitoCanada, and raising awareness about Mitochondrial Disease.
Our thanks to the organizers Lidia Marandola and Irene Manicone for organizing such a beautiful event.

Please see the article below that appeared in the Guide de Montréal-Nord on November 14, 2011.

http://www.guidemtlnord.com/Soci%C3%A9t%C3%A9/Vie%20communautaire/2011-11-14/article-2804166/1700-pour-la-recherche-sur-les-maladies-mitochondriales/1

Le bal Mito mascarade a amassé 1700 $ au profit de Mito Canada vendredi le 4 novembre à la salle de réception Prima Luna. La première soirée campagne de financement de Lidia Marandola et Irene Manicone a rassemblé une quarantaine d’invités. La fondation Mito Canada encourage la sensibilisation et la recherche sur les maladies mitochondriales et offre un soutien aux Canadiens touchés par ces maladies.

Click here to view the article online

“Mitochondrial Disease Primer for Emergency Physicians” Podcast

Suzanne Gowland — Mon, 27 Jun 2011 06:20:55 +0000

On line podcast: “Mitochondrial Disease Primer for Emergency Medicine Physicians” – presented by Dr. Kyle Mclaughlin at Grand Rounds (Calgary, June 2)

On June 2, 2011, Dr. Kyle Mclaughlin, MD, CCFP(EM) presented a talk about Mitochondrial Disease during the Department of Emergency Medicine Rounds at the University of Calgary.

You can listen to and view the presentation on a podcast produced by the Physicians Learning Program at: http://albertaplp.ca/mitocanada-mitochondial-disease/?id=659.

Please share and pass along this great discussion of mitochondrial disease from one physician working to raise awareness and educate other physicians about mito.

Global Mitochondrial Disease Awareness Week

Suzanne Gowland — Thu, 16 Jun 2011 14:56:59 +0000

September 18-24, 2011 is Global Mitochondrial Disease Awareness Week

Across the globe the week will be marked with various educational, fundraising and advocacy efforts all designed to raise awareness about mitochondrial disease.

For more information about the global efforts to spread awareness of mitochondrial disease, please see the website: http://www.gmdaw.org

MitoCanada will be participating in Mitochondrial Disease Awareness Week with the annual “Running on Empty” Mito Family Walk & Roll in Hamilton, Ontario on September 17th.

The “Running on Empty” Ultramarathon for this year will be just before Mito Awareness Week on August 28th.

Our MitoEvents page has all the details at: http://www.mitocanada.org/mitoevents/

Please join in to spread awareness any way you can!

Support Survey

Suzanne Gowland — Sat, 28 May 2011 04:42:38 +0000

MitoCanada is working to build support for those affected by Mito, their families and caregivers, and to ensure we truly meet the needs of the mito community in Canada, we would like to hear from you!

We are sending out a link to a Support Survey that has been put together to help give us a baseline for the Support Committee to start working from as we move forward.

http://app.fluidsurveys.com/surveys/support-chair/mitocanada-support-survey/

It will allow us to have a basic understanding of what type of service that may or may not be useful, helpful or even needed before we start planning for the future.

The survey is done anonymously, so please try and answer all questions and be very honest when it comes to giving feedback at the end of the survey in the comments section!!

The link for the survey is also available on our Facebook page at: https://www.facebook.com/home.php#!/pages/Mito-Canada/339309064564.

Please feel free to pass along this link, or the link to the survey on Facebook, to anyone you know who may wish to provide input to the MitoCanada Support Team.

Thank you so much for spending some of your valuable time helping the Support Team at MitoCanada.

MitoCanada Ironman Double Double

Suzanne Gowland — Thu, 19 May 2011 19:06:36 +0000

Dr. Kyle McLaughlin is an emergency room doctor, inspired by MitoCanada and the Penny family to do what he can to raise awareness. He is doing something that most of us would probably only dream of doing, running 2 ironman-distance triathlons this summer.
He is blogging about his preparation and working to create awareness of Mitochondrial disease at:
http://mitocanada-ironman-double-double.blogspot.com/

He has also created a personal donation page to raise funds for MitoCanada, to help in our mission to raise awareness, support those affected, and promote research into mitochondrial disease.
Donations can be made at:
Dr. Kyle McLaughlin Giving Page – Ironman Double Double

Thanks Kyle for all your support, from all of us at MitoCanada!